Lysosomal Storage Disorders Support Society

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About Us

Lysosomal Storage Disorders Support Society (LSDSS), founded in 2010, is registered and headquartered in Delhi.

LSDSS is headed by a group of parents and caregivers of LSD patients who know what it’s like to live with LSDs.

Our Mission

LSDSS endeavors to transform the life of children affected by rare Lysosomal Storage Disorders. Our mission is to increase awareness about the prevention of such disorders in future offspring as well as counsel the affected patients and families on how to cope with existing conditions, ensuring no patient or family living with an LSD ever feels alone.

Our Vision

Our vision is to ensure that every person in India suspected with a LSD will receive an accurate and timely diagnosis and that every person diagnosed with a treatable LSD will have access to the care and treatment he/she rightfully deserves.

Aims and Objectives

To advocate with the central and state governments and other stakeholders to establish a sustainable healthcare model for all LSD patients in India.

To partner with media, NGOs, human rights groups and other stakeholders to raise awareness and educate the general public about the various rare genetic life-threatening LSDs.

Work with the governments to promote early and accurate diagnosis and screening programs for such rare diseases.

Help all treatable LSD patients get appropriate treatment and supportive care in time.

Share experiences to create a strong public voice on the issue.

Ideate best supportive care and optimum patient outcomes. This would include, but not be limited to, development of mechanisms for rehabilitation, counseling, capacity building and fund raising amongst others activities.