Centers of Excellence (COE)
The Government of India, vide the National Policy for Rare Diseases 2021, has notified eight Centers of Excellence (COE) across India as listed below.
Patients/caregivers are advised to visit their nearest COE with all medical reports of the patient for evaluation and registration in the government’s Digital Portal for Crowdfunding and CSR Donations for Rare Diseases, which can be accessed here.
| Region | Covered States/UTs | Center of Excellence |
|---|---|---|
| North | Haryana Himachal Pradesh Punjab Rajasthan Chandigarh Delhi Jammu and Kashmir Ladakh | 1) All India Institute of Medical Sciences (AIIMS), New Delhi Contact: Dr. Neerja Gupta Dept. of Pediatrics Email: neerja17aiims@gmail.com 2) Maulana Azad Medical College (MAMC), New Delhi Contact: Dr. Seema Kapoor Dept. of Pediatrics Email: drseemakapoor@gmail.com 3) Post Graduate Institute of Medical Education and Research (PGIMER), Chandigarh Contact: Dr. Inusha Panigrahi Dept. of Pediatrics Email: inupan@yahoo.com 4) All India Institute of Medical Sciences (AIIMS), Jodhpur, Rajasthan Contact: Dr. Kuldeep Singh Dept. of Pediatrics Email: singhk@aiimsjodhpur.edu.in |
| South | Andhra Pradesh Karnataka Kerala Tamil Nadu Telangana Andaman and Nicobar Lakshadweep Puducherry | 1) Centre for Human Genetics, Indira Gandhi Institute of Child Health (IGICH), Bengaluru, Karnataka Contact: Dr. Meenakshi Bhat Email: bhat.meena@gmail.com 2) Nizam Institute of Medical Sciences (NIMS), Hyderabad, Telangana Contact: Dr. Ashwin Dalal Head, Diagnostics Division Email: ashwindalal@gmail.com 3) Sree Avittam Thirunal Hospital (SAT) Hospital, Thiruvananthapuram, Kerala Contact: Dr. Sankar VH Email: sankarvh@gmail.com 4) Institute of Child Health and Hospital for Children, Chennai, Tamil Nadu |
| West | Goa Gujarat Maharashtra Dadra and Nagar Haveli Daman and Diu | King Edward Memorial (KEM) Hospital, Mumbai, Maharashtra Contact: Dr. Mamta Muranjan Dept. of Pediatrics Email: muranjanmamta@gmail.com |
| East/North-East | Bihar Jharkhand Odisha West Bengal Arunachal Pradesh Assam Manipur Meghalaya Mizoram Nagaland Sikkim Tripura | Institute of Post Graduate Medical Education & Research (IPGMER), Kolkata, West Bengal Contact: Dr. Suchandra Mukherjee Dept. of Neonatology |
| Central | Uttar Pradesh Chhattisgarh Madhya Pradesh Uttarakhand | Sanjay Gandhi Post Graduate Institute of Medical Sciences (SGPGIMS), Lucknow, Uttar Pradesh Contact: Dr. Shubha Phadke Dept. of Medical Genetics Email: shubharaophadke@gmail.com |