Lysosomal Storage Disorders Support Society
Centers of Excellence (COE)
The Government of India, vide the National Policy for Rare Diseases 2021, has notified eight Centers of Excellence (COE) across India as listed below.
Patients/caregivers are advised to visit their nearest COE with all medical reports of the patient for evaluation and registration in the government’s Digital Portal for Crowdfunding and CSR Donations for Rare Diseases, which can be accessed here.
| Region | Covered States/UTs | Center of Excellence |
|---|---|---|
North | Haryana Himachal Pradesh Punjab Rajasthan Chandigarh Delhi Jammu and Kashmir Ladakh | Dr. Neeja Gupta Dept. of Pediatrics, All India Institute of Medical Sciences (AIIMS), Sri Aurobindo Marg, Ansari Nagar East, New Delhi – 110029 Contact: 011-26593209 Dr. Meenakshi Bothra Dept. of Pediatrics, Maulana Azad Medical College (MAMC), Near Delhi Gate, New Delhi – 110002 Contact: 011-23239271 to 011-23239279 Dr. Ranjit Pal Singh Bhogal Dept. of Hospital Administration, Post Graduate Institute of Medical Education and Research (PGIMER) Madhya Marg, Sector 12, Chandigarh – 160012 Contact: 172-2756565 / 2756464 / 2756005 / 2746018 |
South | Andhra Pradesh Karnataka Kerala Tamil Nadu Telangana Andaman and Nicobar Lakshadweep Puducherry | Dr. Sanjeeva GN Centre for Human Genetics, Indira Gandhi Institute of Child Health, Electronics City Phase 1, Bengaluru – 560100 Contact: 080-28521832 / 28521833 / 28523596 Dr. Ashwin Dalal Head, Diagnostics Division Nizam Institute of Medical Sciences (NIMS), Punjgutta, Hyderabad – 500082 Contact: 040-23489244 |
West | Goa Gujarat Maharashtra Dadra and Nagar Haveli Daman and Diu | Dr. Mamta Muranjan Dept. of Pediatrics King Edward Memorial (KEM) Hospital, Parel East, Mumbai – 400012 Contact: 022-24107559 |
East/North-East | Bihar Jharkhand Odisha West Bengal Arunachal Pradesh Assam Manipur Meghalaya Mizoram Nagaland Sikkim Tripura | Dr. Suchandra Mukherjee Dept. of Neonatology, Institute of Post Graduate Medical Education & Research (IPGMER) SSKM Hospital Rd, Bhowanipore, Kolkata – 700020 Contact: 033-22041100 |
Central | Uttar Pradesh Chhattisgarh Madhya Pradesh Uttarakhand | Dr. Shubha Phadke, Dept. of Medical Genetics, Sanjay Gandhi Post Graduate Institute of Medical Sciences (SGPGIMS), Lucknow – 226014 Contact: 0522-2494334 |