Lysosomal Storage Disorders Support Society
As of September 2026, the Government of India, under the National Policy for Rare Diseases (NPRD) 2021, has notified 16 Centers of Excellence (COEs) for rare disease care across India.
Patients/caregivers are advised to visit their nearest COE with all medical reports of the patient for evaluation and registration in the government’s Digital Portal for Crowdfunding and CSR Donations for Rare Diseases, which can be accessed here.
| Region | Covered States/UTs | Center of Excellence |
|---|---|---|
| North & Central | Haryana Himachal Pradesh Punjab Rajasthan Chandigarh Delhi Jammu and Kashmir Ladakh Uttar Pradesh Chhattisgarh Madhya Pradesh Uttarakhand | 1) All India Institute of Medical Sciences (AIIMS), New Delhi Contact: Dr. Neerja Gupta Email: neerja17aiims@gmail.com Phone: +91-11-26588500 / 26588700 2) Maulana Azad Medical College (MAMC), New Delhi Contact: Dr. Seema Kapoor Email: drseemakapoor@gmail.com Phone: +91-11-23239279 / 23239271 3) Post Graduate Institute of Medical Education and Research (PGIMER), Chandigarh Contact: Dr. Vijay Tadia Email: pgimer@chd.nic.in Phone: +91-172-2747585 / 2747586 / 2755450 4) All India Institute of Medical Sciences (AIIMS), Jodhpur, Rajasthan Contact: Dr. Kuldeep Singh Email: singhk@aiimsjodhpur.edu.in Phone: +91-8003996940 5) Sanjay Gandhi Post Graduate Institute of Medical Sciences (SGPGIMS), Lucknow, Uttar Pradesh Contact: Dr. Kausik Mandal Email: kausik@sgpgi.ac.in Phone: +91-522-2494334 / 2496447 6) AIIMS Bhopal Contact: Dr. Bhavna Dhingra Email: bhavna.pediatrics@aiimsbhopal.edu.in |
| South | Andhra Pradesh Karnataka Kerala Tamil Nadu Telangana Andaman and Nicobar Lakshadweep Puducherry | 1) Centre for Human Genetics, Indira Gandhi Institute of Child Health (IGICH), Bengaluru, Karnataka Contact: Dr. Sanjeeva GN Email: sanju.gn26@gmail.com Phone: +91-9945657034 2) Nizam Institute of Medical Sciences (NIMS), Hyderabad, Telangana Contact: Dr. Ashwin Dalal Email: ashwindalal@gmail.com adalal@cdfd.org.in Phone: +91-40-27216000 3) SAT Hospital, Thiruvananthapuram, Kerala Contact: Dr. Sankar VH Email: sankarvh@gmail.com Phone: +91-9995397487 4) Institute of Child Health and Hospital for Children (ICH & CH), Chennai, Tamil Nadu Contact: Rare Disease / Genetics Department |
| West | Goa Gujarat Maharashtra Dadra and Nagar Haveli Daman and Diu | 1) King Edward Memorial (KEM) Hospital, Mumbai, Maharashtra Contact: Dr. Mamta Muranjan Email: geneticist@kem.edu Phone: +91-22-24107559 2) AIIMS Nagpur Contact: Rare Disease / Paediatrics Department Email: info@aiimsnagpur.edu.in Helpline: 9404044944 |
| East/North-East | Bihar Jharkhand Odisha West Bengal Arunachal Pradesh Assam Manipur Meghalaya Mizoram Nagaland Sikkim Tripura | 1) IPGMER & SSKM Hospital, Kolkata, West Bengal Contact: Dr. Suchandra Mukherjee Email: drsmukherjee70@gmail.com Phone: +91-9830403892 2) Regional Institute of Medical Sciences (RIMS), Imphal, Manipur Contact: Prof Ch. Shyamsunder Email: rims.imphal@gov.in Phone: 0385-2411484 / 2414629 / 2414750 3) Assam Medical College & Hospital (AMCH), Dibrugarh, Assam Contact: Prof Sanjeeb Kakati Email: principalamch@rediffmail.com Phone: 0373-2300080 / 2300352 4) AIIMS Patna Contact: Dr Pratap Patra Email: drpratapkp@aiimspatna.org Phone: +91-612-2451070 |