Centers of Excellence (COE)
The Government of India, vide the National Policy for Rare Diseases 2021, has notified eight Centers of Excellence (COE) across India as listed below.
Patients/caregivers are advised to visit their nearest COE with all medical reports of the patient for evaluation and registration in the government’s Digital Portal for Crowdfunding and CSR Donations for Rare Diseases, which can be accessed here.
| Region | Covered States/UTs | Center of Excellence |
|---|---|---|
| North | Haryana Himachal Pradesh Punjab Rajasthan Chandigarh Delhi Jammu and Kashmir Ladakh | 1) All India Institute of Medical Sciences (AIIMS), New Delhi Contact: Dr. Neerja Gupta Email: neerja17aiims@gmail.com Phone: +919868397529 2) Maulana Azad Medical College (MAMC), New Delhi Contact: Dr. Seema Kapoor Email: drseemakapoor@gmail.com Phone: +919868846606 3) Post Graduate Institute of Medical Education and Research (PGIMER), Chandigarh Contact: Dr. Ranjit Pal Singh Bhogal Email: majorbhogal1984@gmail.com Phone: +917087002089 4) All India Institute of Medical Sciences (AIIMS), Jodhpur, Rajasthan Contact: Dr. Kuldeep Singh Email: kulpra@gmail.com Phone: +918003996940 |
| South | Andhra Pradesh Karnataka Kerala Tamil Nadu Telangana Andaman and Nicobar Lakshadweep Puducherry | 1) Centre for Human Genetics, Indira Gandhi Institute of Child Health (IGICH), Bengaluru, Karnataka Contact: Dr. Sanjeeva GN Email: sanju.gn26@gmail.com Phone: +919945657034 2) Nizam Institute of Medical Sciences (NIMS), Hyderabad, Telangana Contact: Dr. Ashwin Dalal Email: ashwindalal@gmail.com Phone: +914027216147 3) Sree Avittam Thirunal Hospital (SAT) Hospital, Thiruvananthapuram, Kerala Contact: Dr. Sankar VH Email: sankarvh@gmail.com 4) Institute of Child Health and Hospital for Children (ICH & CH), Chennai, Tamil Nadu Contact: Dr. Anuradha Email: anuradha.iit@gmail.com Phone: +919444340166 |
| West | Goa Gujarat Maharashtra Dadra and Nagar Haveli Daman and Diu | King Edward Memorial (KEM) Hospital, Mumbai, Maharashtra Contact: Dr. Akash Shukla Email: drakashshukla@yahoo.com Phone: +919869256376 |
| East/North-East | Bihar Jharkhand Odisha West Bengal Arunachal Pradesh Assam Manipur Meghalaya Mizoram Nagaland Sikkim Tripura | Institute of Post Graduate Medical Education & Research (IPGMER), Kolkata, West Bengal Contact: Dr. Suchandra Mukherjee Email: drsmukherjee70@gmail.com Phone: +919831485596 |
| Central | Uttar Pradesh Chhattisgarh Madhya Pradesh Uttarakhand | Sanjay Gandhi Post Graduate Institute of Medical Sciences (SGPGIMS), Lucknow, Uttar Pradesh Contact: Dr. Shubha Phadke Email: shubharaophadke@gmail.com Phone: +919839220199 |