The Government of India, vide the National Policy for Rare Diseases 2021, has notified eight Centers of Excellence (COE) across India as listed below.
Patients/caregivers are advised to visit their nearest COE with all medical reports of the patient for evaluation and registration in the government’s Digital Portal for Crowdfunding and CSR Donations for Rare Diseases, which can be accessed here.
Region | Covered States/UTs | Center of Excellence |
---|---|---|
North | Haryana Himachal Pradesh Punjab Rajasthan Chandigarh Delhi Jammu and Kashmir Ladakh | Dr. Neeja Gupta Dept. of Pediatrics, All India Institute of Medical Sciences (AIIMS), Sri Aurobindo Marg, Ansari Nagar East, New Delhi – 110029 E-mail: neerja17@gmail.com Mobile: 9868397529 Dr. Meenakshi Bothra Dept. of Pediatrics, Maulana Azad Medical College (MAMC), Near Delhi Gate, New Delhi – 110002 E-mail: meenakshibothra@gmail.com Mobile: 8700509704 Dr. Ranjit Pal Singh Bhogal Dept. of Hospital Administration, Post Graduate Institute of Medical Education and Research (PGIMER) Madhya Marg, Sector 12, Chandigarh – 160012 E-mail: majorbhogal1984@gmail.com Mobile: 7087002089 |
South | Andhra Pradesh Karnataka Kerala Tamil Nadu Telangana Andaman and Nicobar Lakshadweep Puducherry | Dr. Sanjeeva GN Centre for Human Genetics, Indira Gandhi Institute of Child Health, Electronics City Phase 1, Bengaluru – 560100 E-mail: sanju.gn26@gmail.com Mobile: 9945657034 Dr. Ashwin Dalal Head, Diagnostics Division Nizam Institute of Medical Sciences (NIMS), Punjgutta, Hyderabad – 500082 E-mail: ashwindalal@gmail.com Phone: 040-27216147 |
West | Goa Gujarat Maharashtra Dadra and Nagar Haveli Daman and Diu | Dr. Mamta Muranjan Dept. of Pediatrics King Edward Memorial (KEM) Hospital, Parel East, Mumbai – 400012 E-mail: muranjanmamta@gmail.com Mobile: 9920209036 |
East/North-East | Bihar Jharkhand Odisha West Bengal Arunachal Pradesh Assam Manipur Meghalaya Mizoram Nagaland Sikkim Tripura | Dr. Suchanda Mukherjee Dept. of Neonatology, Institute of Post Graduate Medical Education & Research (IPGMER) SSKM Hospital Rd, Bhowanipore, Kolkata – 700020 E-mail: drsmukherjee70@gmail.com Mobile: 9831485596 |
Central | Uttar Pradesh Chhattisgarh Madhya Pradesh Uttarakhand | Dr. Shubha Phadke, Dept. of Medical Genetics, Sanjay Gandhi Post Graduate Institute of Medical Sciences (SGPGIMS), Lucknow – 226014 E-mail: shubharaophadke@gmail.com Mobile: 9839220199 |