Lysosomal Storage Disorders Support Society

Centers of Excellence (COE)

As of September 2026, the Government of India, under the National Policy for Rare Diseases (NPRD) 2021, has notified 16 Centers of Excellence (COEs) for rare disease care across India.

Patients/caregivers are advised to visit their nearest COE with all medical reports of the patient for evaluation and registration in the government’s Digital Portal for Crowdfunding and CSR Donations for Rare Diseases, which can be accessed here.

Rare Disease Centres of Excellence in India

Rare Disease Centres of Excellence in India: Complete List and Contact Details

RegionCovered States/UTsCenter of Excellence
North & CentralHaryana
Himachal Pradesh
Punjab
Rajasthan
Chandigarh
Delhi
Jammu and Kashmir
Ladakh
Uttar Pradesh
Chhattisgarh
Madhya Pradesh
Uttarakhand
1) All India Institute of Medical Sciences (AIIMS), New Delhi
Contact: Dr. Neerja Gupta
Email: neerja17aiims@gmail.com
Phone: +91-11-26588500 / 26588700

2) Maulana Azad Medical College (MAMC), New Delhi
Contact: Dr. Seema Kapoor
Email: drseemakapoor@gmail.com
Phone: +91-11-23239279 / 23239271

3) Post Graduate Institute of Medical Education and Research (PGIMER), Chandigarh
Contact: Dr. Vijay Tadia
Email: pgimer@chd.nic.in
Phone: +91-172-2747585 / 2747586 / 2755450

4) All India Institute of Medical Sciences (AIIMS), Jodhpur, Rajasthan
Contact: Dr. Kuldeep Singh
Email: singhk@aiimsjodhpur.edu.in
Phone: +91-8003996940

5) Sanjay Gandhi Post Graduate Institute of Medical Sciences (SGPGIMS), Lucknow, Uttar Pradesh
Contact: Dr. Kausik Mandal
Email: kausik@sgpgi.ac.in
Phone: +91-522-2494334 / 2496447

6) AIIMS Bhopal
Contact: Dr. Bhavna Dhingra
Email: bhavna.pediatrics@aiimsbhopal.edu.in
SouthAndhra Pradesh
Karnataka
Kerala
Tamil Nadu
Telangana
Andaman and Nicobar
Lakshadweep
Puducherry
1) Centre for Human Genetics, Indira Gandhi Institute of Child Health (IGICH), Bengaluru, Karnataka
Contact: Dr. Sanjeeva GN
Email: sanju.gn26@gmail.com
Phone: +91-9945657034

2) Nizam Institute of Medical Sciences (NIMS), Hyderabad, Telangana
Contact: Dr. Ashwin Dalal
Email: ashwindalal@gmail.com
adalal@cdfd.org.in
Phone: +91-40-27216000

3) SAT Hospital, Thiruvananthapuram, Kerala
Contact: Dr. Sankar VH
Email: sankarvh@gmail.com
Phone: +91-9995397487

4) Institute of Child Health and Hospital for Children (ICH & CH), Chennai, Tamil Nadu
Contact: Rare Disease / Genetics Department
WestGoa
Gujarat
Maharashtra
Dadra and Nagar Haveli
Daman and Diu
1) King Edward Memorial (KEM) Hospital, Mumbai, Maharashtra
Contact: Dr. Mamta Muranjan
Email: geneticist@kem.edu
Phone: +91-22-24107559

2) AIIMS Nagpur
Contact: Rare Disease / Paediatrics Department
Email: info@aiimsnagpur.edu.in
Helpline: 9404044944
East/North-EastBihar
Jharkhand
Odisha
West Bengal
Arunachal Pradesh
Assam
Manipur
Meghalaya
Mizoram
Nagaland
Sikkim
Tripura
1) IPGMER & SSKM Hospital, Kolkata, West Bengal
Contact: Dr. Suchandra Mukherjee
Email: drsmukherjee70@gmail.com
Phone: +91-9830403892

2) Regional Institute of Medical Sciences (RIMS), Imphal, Manipur
Contact: Prof Ch. Shyamsunder
Email: rims.imphal@gov.in
Phone: 0385-2411484 / 2414629 / 2414750

3) Assam Medical College & Hospital (AMCH), Dibrugarh, Assam
Contact: Prof Sanjeeb Kakati
Email: principalamch@rediffmail.com
Phone: 0373-2300080 / 2300352

4) AIIMS Patna
Contact: Dr Pratap Patra
Email: drpratapkp@aiimspatna.org
Phone: +91-612-2451070
The Government of India has designated Centres of Excellence (CoEs) under the National Policy for Rare Diseases (NPRD), 2021, to provide specialised diagnosis, treatment and care for people living with rare diseases. Patients can approach a nearby CoE or any designated CoE in India for evaluation and registration under the NPRD.

Explore the list to find contact details for Government-designated Centres of Excellence across India. Please contact the centre before travelling to confirm appointments, specialist availability and services for your condition.