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News and Updates
The latest from LSDSS, including events, awards and court orders, and recent news about lysosomal storage disorders in India.
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From LSDSS
Events, awards and blog posts
In the news
Headlines about LSDs in India, updated automatically
Court orders
Judgements LSDSS has secured for patients
From LSDSS
Our latest events, blog posts and achievements.
Blog
February 2023
In the news
Recent news about lysosomal storage disorders, rare diseases and LSDSS in India, gathered automatically from Google News. Links open the original article on the publisher’s website.
- Rs 50 lakh aid runs out for 164 rare disease patients; group urges PM Modi to ensure treatment continues - Moneycontrol.comon October 20, 2026
- Navigating India's Rare Disease Treatment Funding Crisis - OC Academyon October 19, 2026
- Rare disease patients seek PM’s intervention to secure additional funds for treatment - ET HealthWorldon October 19, 2026
- 2 women, 1 fight: Saving 20-month-old from rare disease that affects fewer than 5 in India - Firstposton September 17, 2026
- AMCH becomes Northeast India’s first centre to administer enzyme replacement therapy for lysosomal storage disease - India Today NEon September 5, 2026
- AMCH administers enzyme replacement therapy to child with rare disease, 1st in NE - The Times of Indiaon September 5, 2026
- GC Biopharma's Hunter Syndrome treatment 'Hunterase' receives drug approval in India and Taiwan - BioSpectrum Asiaon August 24, 2026
- GC Biopharma wins approval for Hunter syndrome drug in India, Taiwan - Korea Biomedical Reviewon August 24, 2026
- GC Biopharma's Hunter Syndrome Treatment 'Hunterase' Receives Drug Approval in India and Taiwan - BioSpaceon August 24, 2026
- AMCH hands out medicines to 16 rare disease patients, first since becoming centre of excellence - The Times of Indiaon August 22, 2026
- ERT delivers long-term benefits in Indian Gaucher disease patients - Gaucher Disease Newson August 10, 2026
- A Rare Case of Mucopolysaccharidosis Presenting With Dysostosis Multiplex and Preserved Intelligence in a Seven-Year-Old Girl From Northeast India - Cureuson May 14, 2026
- Declare Huntington’s as rare disease: Experts - The New Indian Expresson May 11, 2026
- Huntington's patients seek rare disease tag & registry - The Times of Indiaon May 9, 2026
- How India is Revolutionizing Rare Disease Care in 2026 - OC Academyon May 6, 2026
- Union Ministry of Health and Family Welfare Inaugurates 2-Day National Conference on Rare Diseases in New Delhi (5–6 May 2026) - www.pib.gov.inon May 5, 2026
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Court orders
Read the court orders LSDSS has secured to help LSD patients in India get treatment.
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