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Articles from LSDSS about lysosomal storage disorders in India: awareness, prevention, and the challenges families face in getting diagnosis and care.
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Guide
9 November 2026
Who can get financial assistance under the National Policy for Rare Diseases, and the steps to follow, from diagnosis to treatment at a Centre of Excellence.
Guide
9 November 2026
How the Ministry of Health’s crowdfunding portal works, how a patient gets listed, and how families can use it to raise funds for treatment.
Guide
9 November 2026
A checklist for your first visit to a rare disease Centre of Excellence: what to take, the questions to ask, and what to do afterwards.
Blog
26 February 2023
Why marriages between blood relatives raise the risk of genetic disorders such as LSDs, and how awareness and counselling can help.
Blog
4 February 2023
How limited awareness, access to care, cost and a shortage of trained professionals make LSDs harder to diagnose and treat in rural India.
Blog
16 January 2023
How awareness, stigma, traditional remedies and family support affect the diagnosis and care of LSDs in India.
Articles are for general information and are not medical advice. See our Disclaimer.
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