Manjit is self-employed in the legal and corporate world, having an experience of 38 years. He has lost two sibling sons to dreaded MPS-2 (Hunter’s Syndrome) in the absence of timely ERT. He is striving to get ERT or the best available treatment for all identified LSD patients in India.
Umesh is a parent of an LSD patient and has been associated with the LSDSS since its foundation for over 10 years, and has been actively involved in patient advocacy for LSDs, including creating awareness and taking initiatives to overcome the various challenges faced by LSD patients in India.
Father of an MPS-2 child working towards awareness of LSDs in Bihar, Chhattisgarh, and Jharkhand.