Lysosomal Storage Disorders Support Society

Our Team

LSDSS is a pan-India Society represented by parents elected as office bearers who are continually striving to spread awareness about LSDs and working untiringly to accomplish the objectives of the Society.

President

Manjit Singh

Manjit is self-employed in the legal and corporate world, having an experience of 38 years. He has lost two sibling sons to dreaded MPS-2 (Hunter’s Syndrome) in the absence of timely ERT. He is striving to get ERT or the best available treatment for all identified LSD patients in India.

General Secretary

Umesh Sharma

Father of an MPS-2 child. Umesh is one of the founding members of LSDSS working to get the necessary treatment and support for LSD patients.



Joint Secretary

Raja Murugappan

Father of a Type-3 Gaucher child on ERT, working tirelessly for the cause of LSDs in South India.





Treasurer

Amit Upadhayay

Father of an MPS-2 child working towards awareness of LSDs in Bihar, Chhattisgarh, and Jharkhand.


National Youth Secretary

Suyog Sathe

Suyog has been associated with the LSDSS for over 10 years, and has been actively involved in patient advocacy initiatives for rare diseases in India, including creating awareness and advocating for a national rare disease policy.

Core Committee

Kamaljeet Kaur

Spouse of Manjit Singh, President of LSDSS, working 24×7 to take the LSD cause forward. She has been counseling patients and families since October 2019 and organized Gaucher Day at Sir Ganga Ram Hospital, Delhi, in 2019 and International Rare Disease Day at AIIMS, Bhopal in 2021.

Harsh Bhasin

A parent to an MPS-2 patient, active member of LSDSS, keeps liaison with Ministry of Health and other government departments.



Shital Bhatkar

An LSDSS member since 2011, mother to a Niemen’s Pick patient (now in eternity). She is also an LSDSS State Coordinator for Maharashtra, keeps liaison with KEM Hospital, Mumbai, and counsels and guides state LSD patients.

Manoj M.

LSDSS Kerala State Coordinator, parent to a Pompe patient, has been untiringly pursuing LSDSS judicial case in the state high court.

Col. Sriniwas

A friend of LSDSS since 2013, has been the guiding force and Legal Advisor to LSDSS.

Life Patrons

Shashank Sathe

One of the founding members of LSDSS and ex-coordinator for the state of Maharashtra, he has been a patron of LSDSS and has been donating to it regularly since its foundation.

Dr. Jawahar Lal

Retired government doctor and grandfather of an MPS-1 patient from Delhi.