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Lysosomal Storage Disorders Support Society

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Updates from LSDSS

News about LSDSS’s work: awards, international meetings and conferences where we represent LSD patients and families from India.

Latest updates

Award

12–14 September 2022

LSDSS was chosen from more than 40 nominated patient organisations worldwide for Global Genes’ “Champions of Hope” award.

Conference

25–27 May 2022

LSDSS joined rare-disease patient organisations from across Asia Pacific at Pinnacle Singapore, organised by APARDO.

Meeting

7–8 May 2022

The International Gaucher Alliance, of which LSDSS is a member, held its Biennial Members Meeting in Rotterdam.
For the latest news about rare diseases in India, see News and Updates.

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