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Contact Us
Whether you are a patient, a caregiver, a doctor or a supporter, we are here to help. The quickest way to reach us is on WhatsApp.
Get in touch
Phone
Office
Khanpur, Delhi
Ways to reach us
Choose whichever suits you best.
Message us at +91 89288 08431. This is the quickest way to reach us. Families who register with LSDSS are also invited to join our WhatsApp group.
Address
Office: 206, Duggal Complex, School Road, Khanpur, Delhi – 110062, India
Registered office: F-27, Institute of Medical Genetics & Genomics, Sir Ganga Ram Hospital, Rajinder Nagar, New Delhi – 110060, India
Registered office: F-27, Institute of Medical Genetics & Genomics, Sir Ganga Ram Hospital, Rajinder Nagar, New Delhi – 110060, India
Please note: LSDSS is run by volunteers, so please allow some time for a reply. We can guide you, and in some cases help with the cost of supportive care such as surgery, but we cannot fund disease-specific treatment such as ERT or SRT, or give medical advice. In a medical emergency, go to your nearest hospital.
Looking for something specific?
These pages may answer your question straight away.
State coordinators
Find your state coordinator
Our volunteer state coordinators support families in their region, and spread awareness about LSDs among the public, doctors, the media and government officials.
North India
Covers: Delhi NCR, Punjab, Haryana, Jammu and Kashmir, Ladakh, Himachal Pradesh, Uttar Pradesh, Uttarakhand, Chandigarh
East and North-East India
Covers: West Bengal, Arunachal Pradesh, Assam, Manipur, Meghalaya, Mizoram, Nagaland, Sikkim, Tripura
Sib Sankar Chowdhury
Rajasthan
Shakeel Ahmed
Madhya Pradesh
Mohammed Rafiq
Bihar, Jharkhand, Chhattisgarh and Odisha
Covers: Bihar, Jharkhand, Chhattisgarh, Odisha
Amit Upadhyay
Gujarat, Dadra and Nagar Haveli and Daman and Diu
Rafiq Ansari
Karnataka
Balakrishna Reddy
Telangana and Andhra Pradesh
Covers: Telangana, Andhra Pradesh
Kiran Mamidala
Kerala and Lakshadweep
Covers: Kerala, Lakshadweep
Tamil Nadu, Puducherry and Andaman and Nicobar Islands
Covers: Tamil Nadu, Puducherry, Andaman and Nicobar Islands
Raja Murugappan
J. Karunakaran
Want to help families in your state?
Volunteer with LSDSS, or donate to support families living with lysosomal storage disorders.