Home / Events
Events and Awareness Programmes
Since 2010, LSDSS has brought patients, families, doctors and policymakers together for Rare Disease Day, awareness days and medical webinars across India.
At a glance
Since
2010
Past events
20+ events in 10 cities
Webinars
Free to watch on YouTube
Next Rare Disease Day
Upcoming events
No events are scheduled right now
The next Rare Disease Day is on . We hold awareness events with hospitals and Centres of Excellence across India, and will list them here.
Message us on WhatsApp to ask about upcoming events, or follow us on Facebook.
Awareness days
Dates for your calendar
Last day of February
Rare Disease Day
15 April
International Pompe Day
15 May
International MPS Awareness Day
1 October
International Gaucher Day
Past events
Photos from Rare Disease Day, awareness programmes and other events LSDSS has held or joined with patients, families and doctors since 2010. Select an event to see all its photos.
Recent events
October 2025
With the Centre of Excellence for Rare Diseases, Department of Paediatrics, AIIMS Bhopal.
19 June 2025
Organised by the Rare Disease Committee of IPGMER & SSKM Hospital, a Centre of Excellence.
11 March 2023
With NIMS and CDFD, a Centre of Excellence. Over 150 patients, doctors and others attended.
28 February 2023
With SAT Hospital, a Centre of Excellence. Over 30 families attended, with Kerala Health Minister Veena George.
28 February 2023
With AIIMS Bhopal. Over 20 families from Madhya Pradesh and nearby areas attended.
28 February 2023
LSDSS took part in the first Rare Disease Day held by the Ministry of Health and Family Welfare, at AIIMS Delhi.
Earlier events
Awareness day
More photos
Webinars
Recordings of our medical education webinars about LSDs, for doctors, families and healthcare workers.
28 October 2022
Role of obstetricians and gynaecologists in preventing LSDs
Because LSD treatment is so costly and hard to access in India, preventing new cases matters. Dr Mamta Muranjan explains what LSDs are, followed by a panel discussion on how obstetricians and gynaecologists can help prevent them.
Speakers: Dr Mamta Muranjan, geneticist, KEM Hospital, Mumbai; Dr Hrishikesh Pai, President, Federation of Obstetric and Gynaecological Societies of India (FOGSI)
29 April 2022
Pompe disease and its management
A virtual CME for doctors, held for International Pompe Day and organised with Sanofi Genzyme.
Chair: Dr Darly Saramma Mammen, Government Medical College, Kottayam
Speakers: Dr Mohandas Nair, Government Medical College, Manjeri; Dr V. H. Sankar, Government Medical College, Thiruvananthapuram; Dr Mridula Shankar, District Hospital, Kannur
Hold an awareness event with LSDSS
Hospitals, Centres of Excellence, colleges and companies can work with us on Rare Disease Day and other awareness events. Volunteers are always welcome.