LSDSS wins prestigious Global Genes “Champions of Hope” Award

The Lysosomal Storage Disorders Support Society (LSDSS) has been honored with the prestigious “Champions of Hope” award in the Foundations category by Global Genes at the RARE Patient Advocacy Summit 2022 held on 12-14th September at San Diego, California.

The LSDSS, which is the first patient organization to bring the topic of rare diseases and Lysosomal Storage Disorders (LSDs) to the forefront of discussion in India, was selected as the winner from more than 40 nominated patient organizations worldwide.

Each year, Global Genes, a leading global rare-disease patient advocacy organization, asks the community to nominate those deserving of recognition for their extraordinary efforts in rare diseases. The Champions of Hope Award serves as a great recognition of the relentless efforts by LSDSS since its foundation in 2010 to improve the lives of rare disease patients, in particular those affected by LSDs, in India.

The award was received by LSDSS Secretary Mr. Suyog Sathe and President Mr. Manjit Singh.