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Lysosomal Storage Disorders Support Society

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Support a cause that matters

Every contribution, big or small, brings light into the lives of individuals and families living with Lysosomal Storage Disorders.
A smiling young boy at the LSDSS MPS Awareness Day in Delhi

Why your contribution is vital

Your gift reaches patients where it matters most

At LSDSS, we are dedicated to making a real difference in the lives of people affected by Lysosomal Storage Disorders. LSDs are rare, often misunderstood and very expensive to treat.

Direct impact on lives

Guidance, supportive care and advocacy for people living with LSDs in India.

Awareness and education

Educating doctors and the public, so LSDs are diagnosed earlier and managed better.

Empowering families

Counselling, guidance and community support to help families navigate life with an LSD.

Accessible healthcare

Advocating for policies that make LSD treatment more accessible and affordable in India.

Transparency

How we use your donations

A significant portion of every donation goes directly to patient care. The rest builds awareness, community and a stronger voice for patients.

01

Direct patient support

Help with the cost of supportive care, such as surgery, for families who cannot afford it.

02

Educational programmes

Educational materials, workshops and seminars that spread awareness about LSDs.

03

Community building

Support networks and events that bring patients and families together.

04

Advocacy

Working with policymakers and healthcare providers to improve care and access to treatment.

What support makes possible

Real wins for LSD patients in India

2014

35 children start treatment

LSDSS convinced Shire (now Takeda) to start an International Charitable Access Program in India.

2014

Same-day import permits

On our representation, the DCGI simplified approvals for importing life-saving LSD drugs.

2017–18

IGST exemption on drugs

Secured from the Ministry of Finance for life-saving drugs received through charitable access programmes.

2019

Free treatment through ESIC

ESIC agreed to provide free treatment to employees’ eligible children with LSDs and other rare diseases.

Questions about donating

Can’t find your answer? Write to contactus@lsdssindia.org.
Yes. All donations to LSDSS are eligible for tax exemption under Section 80G of the Income Tax Act, 1961, vide registration AAATL8168J22DL02.
At present we can only accept donations from within India, in INR.
Yes. Online donations are processed securely through Razorpay’s payment gateway.
Write to contactus@lsdssindia.org within 7 days with the payment reference, and we will refund the full amount. See our Donation and Refund Policy.
LSDSS is a pan-India non-profit society registered in New Delhi (S/69555/2010), founded and run voluntarily by parents and caregivers of LSD patients.

Every contribution counts

Help a family living with an LSD get the care they need.