Disclaimer
At a glance
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In an emergency
Questions
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1. Not medical advice
The information on this website, including text, images, videos and links, is for general information only. It does not replace professional medical advice, diagnosis or treatment. Always talk to a qualified doctor about the patient’s condition and treatment.
Never ignore medical advice or delay seeking treatment because of something you have read on this website. In a medical emergency, go to your nearest hospital.
2. Accuracy
We review the information on our disease pages regularly, and each page shows when it was last reviewed. Even so, medical knowledge, treatments, government rules and schemes change, and mistakes can happen. LSDSS does not guarantee that the information is complete, accurate or up to date, so please check anything important with your doctor or the authority concerned.
3. Treatment, funding and schemes
Information about government schemes such as the National Policy for Rare Diseases, treatment costs, crowdfunding and clinical trials is for guidance only. Whether a patient is eligible is decided by the government, hospital or organisation concerned. LSDSS cannot guarantee any funding or treatment, and we do not fund disease-specific treatment such as enzyme replacement therapy.
4. Patient stories
Patient stories describe one family’s experience, shared with their permission. Every patient is different, and what helped one may not suit another.
5. Other organisations and products
We link to and mention other organisations, hospitals, companies and medicines to help you find information. This does not mean LSDSS endorses them, and we are not responsible for other websites’ content.
6. Translations
Translations of this website are made automatically and may contain errors. The English version is the official one. See our Translation Disclaimer.
7. Liability
As far as the law allows, LSDSS is not liable for any loss or damage arising from the use of, or reliance on, information on this website. See also our Terms and Conditions.