Latest News
Read the latest news articles featuring the LSDSS and the latest topics and developments related to Lysosomal Storage Disorders in India!
- Petition sent to Union Health Minister seeking sustainable treatment support for Gaucher Disease - The Hinduon October 19, 2024
- How heel-prick can save an infant’s life - The Times of Indiaon June 4, 2024
- Rare disease patients seek inclusion in BJP’s manifesto for funding - The Hinduon April 6, 2024
- Lysosomal storage disorders identified in adult population from India: Experience of a tertiary genetic centre and review of literature - Wiley Online Libraryon January 2, 2024
- Rare diseases: Funds use by AIIMS rarer - The Times of Indiaon July 29, 2023
- Tackling Rare Disease in India - Inside Precision Medicineon June 5, 2023
- Despite availability of funds, patients with rare Fabry Disease yet to be given treatment, says support society - The Hinduon April 29, 2023
- Fabry Awareness Month: Five-point recommendation to decision makers of India - ETHealthWorldon April 27, 2023
- We remain committed to delivering new options for people with rare diseases: Anil Raina, Sanofi - ETHealthWorldon February 28, 2023
- Rare Diseases Need Not Be Neglected Anymore - BSI bureauon February 28, 2023
- Lysosomal storage disorders: from biology to the clinic with reference to India - The Lanceton November 20, 2022
- Newborn Screening in India: An overview on challenges and opportunities to improve public health - Express Healthcareon October 7, 2022
- Global Genes Recognizes RARE Champions of Hope - Cold Agglutinin Newson September 16, 2022
- Rare disease diagnosis programme unveiled by Takeda - Hyderus Cyfon July 2, 2021
- Identification of novel variants in a large cohort of children with Tay–Sachs disease: An initiative of a multicentric task force on lysosomal storage disorders by Government of India - Nature.comon August 6, 2019
- Takeda expands India portfolio of rare disease therapies - BSA bureauon July 15, 2019
- Health Minister expedites process of rare disease policy formation - BSI bureauon June 27, 2019
- 'Indians at a higher risk of rare genetic diseases' - The Times of Indiaon August 1, 2018
- Sanofi Genzyme reaffirms its support towards rare diseases in India - BSI bureauon February 26, 2018
- The diagnosis of Lysosomal Storage Disorders is challenging: Dr. Madhulika Kabra - ETHealthWorldon August 21, 2017
- IGST a bitter pill for patients with rare disorders as medicines attract 5%-12% - The Economic Timeson August 4, 2017
- Ignored so far, rare genetic disorders continue to face neglect - BSI bureauon September 1, 2014